Javarien must live his life with caution. He has hemophilia, a rare disorder where his blood doesn’t clot properly. Kids Wish Network, a children’s charity that grants wishes for kids with life-threatening illnesses, learned about his interests and brought drama to his life, making a scene… he’d be visiting the set of his favorite musical drama!
Kids Wish Network flew Javarien’s family from Alabama to Chicago, where it was all about to go down. They were escorted to the set of the dynamic drama, giving Javarien an up-close and personal experience of watching his favorite show being filmed. “They showed me around all the sets,” said Javarien. It was surreal getting to tour all the familiar and iconic locations that he’s seen on TV.
And then it was lights, camera, action…. Javarien and his family were seated in chairs behind the writers and director to watch scenes being filmed. The show’s main stars appeared from behind the set and surprised Javarien with a visit. “It was amazing…. getting the chance to meet everybody that I grew up watching,” said Javarien. They spent time getting to know him, and kept returning to see Javarien during breaks in filming. “The best thing that one of them shared with Javarien was so important,” said his dad Ronald. “He told Javarien to ‘stand for what you believe in and follow your dreams.’” For Javarien, this happened sooner than later when the award winning director gave him his big moment as an honorary director cueing actors calling action and cut.
It was a day full of plot twists… Javarien also hung out with additional actors from the series, and the show graciously gave him a swag bag as a special memento of his extraordinary day on set. “My favorite part was seeing my son so happy,” said his dad.
During Javarien’s wish, his family stayed at the swanky Residence Inn Chicago River North, and enjoyed a memorable dinner at RPM Steak.
“We’re so appreciative to everyone at the show for embracing Javarien’s dreams and making his wish so spectacular,” said Kids Wish Network Executive Director Tam Lai.
Kids Wish Network is a national charitable organization dedicated to infusing hope, creating happy memories, and improving the quality of life for children with life-threatening conditions and struggling with life-altering situations. KWN provides trip expenses, meals, accommodations and additional spending monies to all wish families whenever traveling as applicable. Visit www.kidswishnetwork.org to learn about our different programs, and find out how you can help make dreams come true and sponsor a wish for a deserving child.