frozen

Park Hopping Palooza

“Hannah's most treasured memory was experiencing Disney” It took nine years for doctors to officially diagnose Hannah with Cockayne syndrome, a rare neurodegenerative disorder characterized…

Frozen Fun for Brooklyn

“Her favorite was when she met the ‘Frozen’ sisters” Adrenal Insufficiency or Addisons disease is a rare hormone disorder that affects about one in 100,000…

Journey’s Fantasyland Adventure

“It was truly a magical experience” At 10 months old Journey was admitted to the hospital because she was losing a pound every day. Doctors…

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