Kids Wish Network…. what an amazing organization of exceptional people making a difference in the world. Honestly as a parent, having a wish child is a blessing and a heartbreak all at once. To have a child that qualifies is a heartbreak, not the child itself, but the health complications and the impact of that on the child and family.
Receiving a wish is EXCITING! Seeing the reaction on your child’s face; it’s hard to describe the uplifting that it does on your heart at a time when you need it most. Our Hunter received his wish- All the Legos in the world- and boy was that delivered. Hunter was living in NC receiving care, and his little light was getting dimmer and dimmer. His doctors made arrangements to transfer him to another hospital and that meant uprooting the whole family (mom, dad, Haden his older brother, Penelope his little sister, and his dog Duke.) Hunter made sure to take EVERY SINGLE Lego with him in the moving van.
We have been at another hospital for a little over a year now and his health has improved so much. He really doesn’t resemble the child that he once was. He has had more diagnoses and medications than any child should ever need. Currently, he is being transferred (again) to another hospital. This hospital treats pediatric and adults so he never has to move again. Between 3 hospitals in a 4 hour radius Hunter has about 20 doctors… through all of this he never leaves his lego bag at home. His legos go with him in his special little lego bag to EVERY appointment.
During his visits, tests, and stays he has his legos and plays with them with anyone that he can grab. It’s a very small thing, the lego, even annoying and a little painful (probably just for the parent that steps on them though.) To Hunter, it’s the whole world. The lego is this little item that he can take with him anywhere he goes that makes even the scariest of his days enjoyable, it’s how he makes friends, how he calms down, and how he controls a little part of his life that he seems to never be in control of. Life is hard, unexpected, painful, and it gets littered with little blessings.
The Kids Wish Network crew did an amazing job with Hunter’s blessing. It’s been over a year and he still talks about it, still plays with his legos everyday, and still asks for new ones. Hunter has more than a dozen serious diagnoses that are progressive. His health is not expected to improve, we maintain what we can, accommodate when it’s feasible, and make him comfortable and happy. Life is hard, it’s not what we thought it would be like, but there are so many blessings in every day. We can’t thank this foundation enough, not just for his wish; but for caring about our whole family, for keeping in touch and sharing our excitement and just making us aware that they are there if we need anything, even just a minute to talk. God bless you all.