She loves princesses – especially her favorite characters Ariel, Elsa, Moana and Snow White.
When Addelyn was born, she appeared to be a healthy baby. At 6 months old, she started displaying symptoms that seemed out of the ordinary. Addelyn no longer made direct eye contact with her mom. Addelyn’s pediatrician recommended that she see a pediatric optometrist. Further testing was necessary, and she had an MRI. At 9 months old, Addelyn experienced her first seizure. She was admitted to the ICU where she had an additional MRI and multiple EEG tests concluding that she had infantile spasms, a rare epileptic disorder that occurs in young children, usually under the age of one. Addelyn was given different types of medications, but all were unsuccessful in stopping the seizures… she was having 15 to 20 per day. Addelyn was placed on a special diet, wore a helmet to protect her head, and continued to be monitored with EEG testing. Doctors then suggested brain surgery.
At the age of 2, Addelyn had a hemispherectomy, a very rare surgical procedure where half of the brain is removed or disabled. The surgery was successful in treating her seizure disorder, however it left Addelyn hemiplegic, with weakness in her left arm and leg and limited vision on the left side of each eye. After the surgery, Addelyn had speech, occupational and physical therapies which assisted her in learning how to crawl, walk and finally start talking. Due to the hemiplegia, she’ll live her life physically handicapped. Addelyn walks with a limp and wears a brace on her left leg.
A few years later, Addelyn was also diagnosed with an autoimmune disease in which the pancreas produces little or no insulin. She has to be cautious with what she eats, and needs daily insulin injections. The hemiplegia makes it more difficult, and Addelyn must rely on others to help her with these additional medical challenges.
Addelyn enjoys playmobil sets, puzzles, painting, reading and participating in her school’s special olympics. She also loves princesses and Disney – especially her favorite characters Ariel, Elsa, Moana and Snow White.
Kids Wish Network knows the perfect wish for Addelyn and is hard at work planning it for her; make sure to stay up to date on all of the details of her wish!