Alex had a high white blood count at birth which led to a diagnosis of Noonan syndrome, a multi-system disorder often characterized by heart defects, bleeding problems, and failure to thrive. He has already undergone three heart surgeries, and continues to see a cardiologist twice a year.
While Alex can be a little shy at first, he is enthusiastic about baseball, and most of his conversations revolve around his favorite sport. He loves baseball so much, that he can often be seen walking around with a baseball glove on his hand throughout the day. When Kids Wish Network found out that Alex was such a huge baseball fan, they hit it out of the park, arranging for him to attend a Boston Red Sox game along with lots of VIP perks.
Alex and his family were flown to Boston and they enjoyed downtown accommodations at the welcoming and modern Kimpton Onyx boutique style hotel, located in the heart of the historic West End. After a restful night, the family dined on a sumptuous gourmet breakfast at the hotel’s trendy Ruby Room. That afternoon, Alex’s VIP experience continued when he and his family were lavishly escorted to all of the day’s festivities in a beautiful star-worthy limo by Sunset Limousine Service. They enjoyed an indulgent lunch at the cozy and atmospheric Palm Restaurant, and were then taken by limousine to Fenway Park for the Boston Red Sox’s big game. Alex arrived early, because part of his VIP treatment included a special invitation to go down on the field and watch the team’s batting practice. He even met his favorite Boston Red Sox player Mookie Betts, and was invited to take practice in the same batting cages as the famed team.
It was already an amazing day full of memories, and then Alex experienced his favorite pastime…. baseball! The game was extra special for Alex and his family, with seats located right behind home plate. Alex’s mom Mary said, “He felt incredibly honored to see Fenway Park, the oldest ballpark in Major League Baseball.” After all the excitement, Alex’s limo drove them back to their hotel to rest up from their amazing day.
On the last day of the trip, Alex and his family enjoyed another delicious breakfast at the Ruby Room, before they experienced an afternoon of historical adventure. They relived the most important event leading up to the American Revolution, experiencing shows, exploring full-scale restored 18th Century sailing vessels, and interactive exhibits at the fun and educational Boston Tea Party Ships and Museum.
“Everyone went above and beyond,” said Alex’s mom Mary. “The hotel staff was incredible, the limo driver brought cupcakes that his wife made, and the staff at The Palm was amazing and so awesome to Alex.” She continued to say, “The people at Fenway Park also made sure that Alex met Mookie when they found out how he felt about him. Everyone made Alex feel so important.”
Kids Wish Network would like to thank the following sponsors for making Alex’s dreams become a reality:
- Kimpton Onyx Hotel
- Boston Red Sox
- The Palm
- Sunset Limousine Service
- Boston Tea Party Ships & Museum