Even though Hunter struggles with so many health conditions, he still remains sweet and happy, and is a fighter in battling his illnesses.
Hunter was born with lots of freckles and birthmarks. Due to his family’s health history, his pediatrician ran genetic testing and it revealed that Hunter had a rare type of neurofibromatosis, a genetic disorder that causes tumors to form on nerve tissue. Hunter was also behind in developmental milestones such as talking and walking, and it was obvious to Hunter’s mom that he also had pain in his legs. When he was a toddler, he started taking medication. Hunter also receives occupational, physical and speech therapies.
Hunter has undergone 7 surgeries in the past 6 years, and last year he was also diagnosed with Chiari malformation. Chiari malformation is a condition in which brain tissue extends into the spinal canal. It occurs when part of the skull is abnormally small or misshapen, pressing on the brain and forcing it downward. A routine MRI showed that he also had a mass on his brain which was continuing to grow, so Hunter had surgery to help relieve some of the pressure. He struggles with balance, memory loss and back pain. Hunter has a feeding tube, and is very limited in physical activity. He now takes multiple medications for a variety of ailments, and recent testing revealed that he has 3 tumors on his kidneys. Hunter is always exhausted, and sleeps 18 to 20 hours a day. There are some days that he doesn’t get out of bed at all.
Even though Hunter struggles with so many health conditions, he still remains sweet and happy, and is a fighter in battling his illnesses. His favorite activities are drawing, playing video games and building Lego sets.
Kids Wish Network knows the perfect wish for Hunter and is hard at work planning it for him; make sure to stay up to date on all of the details of his wish!