Sophie appeared as a healthy child, until experiencing reoccurring flu-like stomach symptoms. Medications weren’t helping her to get better, and after being treated for Pneumonia, she spiked a high fever and felt debilitating pain in her legs. Sophie was rushed to the ER, and testing revealed that she had Acute Disseminated Encephalomyelitis (ADEM). This condition is a brief but intense attack of inflammation in the brain and spinal cord, and occasionally the optic nerves that damages the brain’s myelin (the white coating of nerve fibers).
Sophie worked hard for the next year, undergoing rehabilitation to learn how to walk again, as well as educating herself about the illness. After having three attacks from the condition, she was also diagnosed with Neuromyelitis optica (NMO), a heterogeneous condition consisting of the simultaneous inflammation and demyelination of the optic nerve and the spinal cord.
Both of Sophie’s illnesses are treated with physical therapy and daily immunosuppressant medications. Each day, Sophie is dependent upon her family to turn her throughout the night to avoid her body from stiffening. She and her family are also primarily homebound, because of the heightened risk of her getting sick and having another attack. Each sustained attack has caused her more weakness.
Even after all that Sophie has endured, she still remains strong and caring. Her conditions may have weakened her physically, but she does not let it dull her sparkle or limit her vivid imagination. Sophie exercises her creative mind, sometimes dreaming about how fun it would be to fly with mystical creatures like dragons and unicorns, or even meet a mermaid. She enjoys listening to music and loves her family, being outdoors, crafting, and is inquisitive about animals. So much so, that Sophie hopes to become a veterinarian. Sophie’s creativity sparks a travel wish as magical as her imagination!
Kids Wish Network knows the perfect wish for Sophie and is hard at work planning it for her; make sure to stay up to date on all of the details of her wish!