“She got to meet all her favorites from Frozen”
Born eight weeks premature, Myli started suffering from seizures immediately and was flown to a nearby children’s hospital for her first two weeks of life. At her one-month follow-up appointment, her doctor noticed Myli’s legs were not functioning normally and were somewhat crossed. According to her pediatrician, baby Myli would never walk like a “normal” child so a physical therapy protocol was initiated.
At six months old, Myli began having more seizures that lasted much longer, now up to five minutes in length. A new medication was prescribed that eventually stopped those seizures, but just six months later – around her first birthday – she was diagnosed with two life-threatening illnesses: cerebral palsy and periventricular leukomalacia. Cerebral palsy is a movement disorder caused by damage to the developing brain, and periventricular leukomalacia is a brain injury characterized by the necrosis or coagulation of white matter near the lateral ventricals in the brain. Premature infants are at the greatest risk of this disorder. Both conditions can affect numerous parts of the body.
Myli’s seizures returned again around the time of her second birthday and have since continued to disrupt her life. These complex seizures affect Myli’s sleep patterns and often wake her up at night. She takes multiple medications for her seizures and uses physical, occupational, speech, and vision therapy to treat her cerebral palsey.
Despite her frequent seizures and being wheelchair bound, Myli loves anything to do with Disney’s Frozen characters, particularly Queen Elsa and Princess Anna. This is why she was particularly thrilled when Kids Wish Network was able to grant her wish of a three-day trip to Orlando. She visited every park, enjoying every opportunity she could to take pictures with her favorite Disney characters. She and her family also got a chance to enjoy Merlin Entertainments, Madame Tassauds, the Orlando Eye and SEA LIFE.
Her stay at Embassy Suites started off with a special Doc McStuffins cake prepared for her by Jillycakes. When she ate at Chuck E. Cheese, Frozen Queen Elsa and Princess Ann visited her, courtesy of Once Upon a Party. Those two characters were as delighted as she was when Chuck E. Cheese himself greeted his excited restaurant guest. She and her family also enjoyed eating at Bahama Breeze and BJ’s Restaurant & Brewhouse.
Kids Wish Network would like to thank the following sponsors for helping make Myli’s wish come true:
• Embassy Suites Orlando
• Merlin’s Magic Wand, SEA LIFE, Orlando Eye & Madame Tussauds
• Once Upon a Party
• Jilly Cakes
• Chuck E. Cheese
• Bahama Breeze
• BJ’s Restaurant & Brewhouse
• Compassion Partners
• Enterprise Rental Car