“Taylor has had 21 different surgeries in only 9 years”
From the moment Taylor was born, he’s been struggling against his life-threatening illness. One of Taylor’s organs formed partially outside of his body, and within 24 hours of his birth, Taylor was sent to three different hospitals searching for answers.
The right doctor finally diagnosed Taylor with bladder exstrophy, a very rare, complex birth defect resulting from the incorrect formation of the pelvic bone, skin and muscles that join the lower part of the abdomen.
Taylor has since suffered through 21 surgeries in six different hospitals across two states. Taylor also deals with hypoglycemia, acid reflux, gastritis, migraines, is near-sighted, and has permanent hearing loss in both ears.
Despite his daily battle, Taylor had a blast on his wish trip to the Florida theme parks during Disney World’s “Star Wars” Weekend. Dressed in his Obi-Won Kenobi costume, Taylor bravely sauntered up to Darth Vader, light saber in hand, with nothing but excitement in his eyes.
“For Taylor, finding Darth Vader was definitely the best part,” recalls Taylor’s mom, Brittany. “We are forever grateful to Kids Wish Network for giving us a chance to cherish our time together as a family instead of focusing on Taylor’s daily, life-long challenges. Words could never express our gratitude.”