Savannah is a 10-year-old little girl who has Osteogenesis Imperfecta (01) and has been a patient at Texas Scottish Rite Hosptial for Children since she was 11-weeks old. Savannah spends a lot of her time in her wheelchair if not in a cast. OT is commonly known as “brittle bone disorder” and is a genetic disorder characterized by bones that break easily and often for no apparent cause, A person with OI may break a rib while coughing or a leg by rolling over in their sleep. OI has been documented in all ethnic groups, and affects a person throughout their lifetime.
Both Savannah and her mother have OI and have a different lifestyle than most. Savannah’s mother is also in a wheelchair and getting around together can be difficult. Her mother does not drive so Savannah doesn’t have the opportunity to interact with other children or visit places most of us can go. Savannah has learned to be productive and constructive on her own. She loves to read, play games, and has even taught herself to knit.
Savannah’s biggest challenge is to maintain a sense of hope that she can reach the goals she sets for herself. When one of her bones breaks she is casted and all plans must be set-aside for 6-8 weeks while her bones heal. Despite the challenges she faces everyday Savannah is a remarkable young person. She is intelligent, creative and has an amazing sense of humor.
Savannah is a little hero for us all and her smile teaches us to persevere and never give up. We believe Savannah deserves to be nominated for Hero of the Month and we know Savannah would be honored to be recognized.